I am on day 44. I can't wait until the prograf is tapered off or stopped. That is keeping my immune system down and causing all my discomfort. And it is necessary. I am ready to move on, to be well. It will be a while. For now I just juggle symptoms and do whatever I can to make myself comfortable.
I am sure everyone around me feels the same. There are many patients here in the same boat. It's interesting to hear their stories. One lady, quite a bit older than me, is a rock. (Her husband tells a different story.) Everyone has something going on. My biggest job is to eat and drink. That's hard enough. I can ride my bike or walk to problem, but nothing sounds good to eat. Bummer. If I push liquids, I get an upset tummy.
My tongue is better. They gave me special mouthwash. I had a candy, so it looks red.
Dr. Holland saw me today. He says everything looks wonderful and my appetite will come back this month. Yay. New taste buds for Christmas. Also important to stay active. I am.
Numbers are good: wbc 6.4, hct 28.3, plateletes 151 (normal!), ANC 4.55, CRE 1.3
I am also very much looking forward to getting this line out and not worry about showers.
There is a lot to look forward to.
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