Just Hanging

It's another cold and dreary day. It definitely looks like winter. Thursday we should have sun and 60. That will be a welcome change.

Mom made some great cranberry bread for breakfast. Lunch was leftover potato soup. Dinner was chicken and chickpeas. Of course snacks were peppered throughout the day (thank you for the cookies, Mary!)

Other than eating, nothing else was accomplished. Tomorrow is one more day off, then clinic.

The dogs are a little stir crazy, but adapting.

Just a little needy.

I am stir crazy too. I wish I were gardening, or thrifting, or walking 9 dogs. Heck, you know I wish I were traveling, that's a given. But just a few more...

Today is day 65, I think. On or about Day 100 is a big one.  (Depending on how my progress goes.) Lots more tests, and I should get my central line out. Then I can take real showers again, and be warm doing it. Taking a hose and washing spot by spot stinks. 

Two weeks after day 100 we get more test results. That will be a meeting with the doctor again. 

So at least there's something to look forward to.

Nothing Much

Mom got out and did some shopping. I took a walk. It's colder out there than it looks. The rest of the day I made up for it... Just relaxing.

I don't have lots to do around here, and I can't get into big projects because they take up too much energy. I am still not 100%, but feeling pretty good.

Since Mom is here, she is cooking like a fiend.  Dinner was yummy potato soup. I would make that again. (But no need to since there are lots of leftovers.)

Kent learned a new song. O Little Town of Bethlehem. Moms choice.

Flu Season

Mom is in town. Even she has to wear a mask at clinic. Ha ha. Welcome to my world.

Today's clinic was good. Only fluids needed, and it took forever. We were in traffic (Friday afternoon, last school day before the holiday, last shopping weekend...). It took 2 hours to get home.  Mom was a trooper. It was so late, it was dark outside.

Next clinic is Tuesday morning. I know what that means: prograf level check, and respiratory therapy afterwards. I get to breathe in nasty stuff that will keep me from getting one type of pneumonia.  At least this time I know I need premeds so I don't have an attack. I am told it's a simulated asthma attack. Great.

All in all, that's the news.

Did A Lot

It was a productive day. Lots of computer work. Best part is I got my heated mattress pad on the bed. My legs will be so happy sleeping.

Someone asked me today if I was going back to work when well. Uh.... Yah.  I miss it. She was wondering if I was used to this lifestyle. Well, lifestyle really isn't what I have. I am a caged bird. No fun. I don't want this when well. I want to fly! Go, see, do. Maybe spend the winter bidding Phoenix trips.  Wonder if those citrus trees are ripe with fruit??

Kent and I are skipping Christmas around here. I think I will call a do-over in the spring when I can put some thought and energy into the gifts. I know what I want to do....

Energy. I have some. It's amazing what eating will do. Today's menu was takeout Shane's chicken and fried okra. (What? It's a vegetable).  I tried to nap, but just couldn't. Tonight will be good sleeping.

Clinic tomorrow. 1 pm.  We will embrace the new time since it is a sign of being over the hump. I really need my cre to be low and my mag to be high. Paws crossed.

Hump Day

Ok. So clinic at 1pm wasn't terrible. It was quieter and nice.

My labs look good, I only needed 1.5 ltr of fluids. Don and Linda hardly had time at their appointment before coming to retrieve me.

Don is line free. I am just a bit jealous. About 38 more days for me.  Then my line will come out. (Or so I hear.). Day 100 is going to be huge.

Then two weeks later we sit with the doc for another full assessment.

I keep thinking I turned the corner and am feeling better, but we are now going to say I am over the hump.

Short blog because Kent needs the iPad. All is calm, all is bright.

Ribs

It was a pretty good day. Nice weather, good dogs, short nap.  Tomorrow I have clinic at 1pm. Who knows how that will go. They close at 5:30.

Tomorrow I ride with Don and Linda. Don goes in to get his PICC line out. That is amazing news. Almost 6 months later he is infection free from falling from the tree.  He still has rehab and maybe some plates to put in, but that will be handled later.  I am so glad for them.

Linda cooked dinner for us tonight: ribs, garlic bread, corn, mashed taters, and pumpkin pie.  Just delightful.  While it was cooking, she cleaned up. Thank you, Linda! Ptreety home and Delish food.

I am stuffed.

Day 60

Dr. Morris said I look good for day 60. The only gripe is my kidneys do not like to prograf. Today's number was even higher at 1.6. Now I will get 2ltrs of fluids and continue to drink more and more at home. No, we cannot stop prograf.

We sent away for the chimerism test that will measure how the donated cells are engrafting. Results will be back in a week.

Yesterday I did I some filing: squat, stand, repeat. I went really slowly, but at the end got a little dizzy.  This morning my blood pressure was low (85/68) and my heart rate was high (145). I rested a while and it came back normal. They I was given a walk test to check the oxygen level. 99% at rest, and 99 after walking. No problems.

I just need to eat and drink well. My PA, Maria asked if Mom was in town. I said not yet. Next week. Apparently that's the only caregiver she trusts. I am on the eating stimulant, but it really hasn't taken hold yet. Nothing sounds good yet. I am sick of soup and oatmeal.  The new neighborhood Browns made beef stew. That was good. Thank you for sending a portion my way. It was big enough for two portions for me.

I am sick of my tiny stomach. It shrank. I just have to take lots of little meals.

Hair progress

None.  But eyebrows are coming back.