Friday, September 18, 2015

It's Scheduled

October 17, 2015 will be my one year anniversary of receiving a stem cell transplant from my brother.  Thank you, Ed! That also triggers a restaging.

The restaging is a series of tests (blood draw, bone marrow biopsy, CT scan, pulmonary function test, etc.) to check my progress.  It has been scheduled for October 16. Then we have to wait for the results. The appointment to receive the results is scheduled for November 6. (Happy Birthday, Mom!)

Pending the results, I should be able to get permission from my doctor to go back to my normal job.  It will be a process, but at least it's getting closer!  Don't get me wrong, I am thankful to have my part time job teaching.  I do enjoy it, but it's not my first choice in careers. 

I am so humbled and thankful that I had a perfect match in the family for transplant donation.  Many, many, many do not have that option.  In those cases they have to look outside the family.  There is a wonderful organization that has a national database of potential donors.  It's called Be The Match Foundation.  The men and women who sign up submit a cheek swab and wait until they are needed.  Then they get an all expense paid trip to the doctor and donate whatever cells are needed.  Volunteer donors never pay out of pocket.  How fabulous.

It's a great program, but as you may guess, they need to raise funds.  A friend of mine bought tickets to the fundraiser and asked me to go as her guest.  Yay! I am honored to attend.  I even asked a neighbor to donate an airplane ride as a silent auction item. (Thank you, Vic!) I hope it raises a lot of money!

Other news, September is Blood Cancer Awareness month.  I was asked to tell my story for Northside Hospital as part of a campaign to raise awareness, and solicit funds for those who cannot afford treatment.  Here is how it turned out.


To be honest with you, I am surprised if anyone is still reading the blog.  But, I said I would continue to write with news, and this counts!

Now go enjoy this beautiful Fall Season with those you love! 

That's an order!


Wednesday, September 2, 2015

September Visit

Hi all!
My office visit went well yesterday. My Physician's Assistant (PA) was happy with how I looked and with my numbers. 
Weight 129, temp 98, pulse 80, resp 16, blood pressure 112/74
WBC 4.5, HCT 30.0, Plat 150, ANC 3.12, CRE 1.2
All the other numbers were normal or close to it.

Last time my CD4 count was slightly low. It is the count that tells whether my body can protect against pneumonia (PCP). The results came in today and they were good, so I don't have to do another pentamidine treatment. 

I was hoping to get my BIG TESTS scheduled for October, but as of yet, I don't know. In October it will be blood draw, CT scan, bone marrow biopsy, etc.

October 17 will be a year post transplant. Wow. Time really flies!

So, in other news, I took my first big plane ride since June 2014.  I was so excited.  I visited my family and even a few friends. I also got to go for a couple of boat rides on a lake. How fun!


Me on the Jet.


With Gilbert


Mom, Aunt Pat, and Grandma


With Dave


With David, then we saw Barbara! (Duh...should have brought her some ice cream)


Driving to the Lake with my Sister


On boat #1 


With Brother-in-law on boat #2

Not pictured, but who I got to visit with: Dad, Dave, Ed, Marie, Jeremy, Elizabeth, Samantha, and Lil Dexter.

I wishihad more time. There were so many more people I wanted to see, but Kent went out of town Saturday night, and wasn't expected back.  Thank you, Dave, for dog sitting our 2 plus a foster.  See you tomorrow!